NOGGO S20 / ENGOT-gyn4 – Expression IX – (9)
Long-term survival with gynecological cancer / Long-term survivors with gynecological cancers
Based on the experience with Expression VI – Carolin meets HANNA, a survey that focused on long-term survivors with ovarian cancer, we would like to conduct the same survey with partially slightly modified questions with survivors of other types of gynecological cancer.
What is being investigated in this study?
With the “Expression IX” survey, we would like to expand the patient cohort of long-term survivors and now aim to include long-term survival across all gynecological tumors. As part of the study, we aim to survey patients worldwide with cervical cancer, endometrial cancer and other rare gynecological tumors (e.g., gynecological sarcomas in the uterus or sex cord-stromal tumors) using an anonymized questionnaire and via the internet. The aim of the survey is to identify potential factors that have a positive influence on the course of the disease and life expectancy with these tumors.
What is the procedure for the survey?
You will receive various questionnaires to complete. By completing the questionnaire or answering the questions, you agree to participate in the survey and confirm that you have been fully informed about this survey and understand its objectives. We have deliberately limited the number of questions in order to keep the effort required from you as low as possible. To participate in this survey, we do not require any information such as your name, address or date of birth. The survey is conducted anonymously. Completing the questionnaire will take approximately 1 hour of your time. Please return the completed questionnaire to the person from whom you received the survey, or send it back to the address stated in the questionnaire. You can also participate via the link below.
Are there any risks?
No, it is a survey.
Eligibility requirements:
- Women aged 18 years and older can participate in this study,
- Patients diagnosed with a gynecological cancer five years ago or more
Where can I take part in the survey?
You can participate online or via the centers.